Here is your chance to create and implement a prototype of a web-based application to track symptoms and vitals of patients affected by rare diseases. With about 7,000 rare disease known, patients and families affected by these diseases struggle with the paucity of information available to them about their afflictions. On average, it takes 7.5 years to get a correct diagnosis for a rare disease, and 8 doctors. This is a chance to mend the gap and put information in the hands of the people that need it. The application is mostly intended to be used by families of children affected by rare diseases and will keep track of symptoms and their manifestations over time as well as basic changes in the patient over time to do with weight, height, and head circumference.
ASIS&T is once again hosting a Hackathon for Rare Diseases, on Saturday, April 12th. Here’s a ReCap:
Have you or someone you’ve known been affected by a rare disease? You may know the difficulty in getting information as well as diagnoses; WebMD only goes so far. Well, this is your chance to help remedy the situation—you could help design an app.