Hackathon for Rare Diseases

Have you or someone you’ve known been affected by a rare disease? You may know the difficulty in getting information as well as diagnoses; WebMD only goes so far. Well, this is your chance to help remedy the situation—you could help design an app.

Here is your chance to create and implement a prototype of a web-based application to track symptoms and vitals of patients affected by rare diseases. With about 7,000 rare disease known, patients and families affected by these diseases struggle with the paucity of information available to them about their afflictions. On average, it takes 7.5 years to get a correct diagnosis for a rare disease, and 8 doctors. This is a chance to mend the gap and put information in the hands of the people that need it. The application is mostly intended to be used by families of children affected by rare diseases and will keep track of symptoms and their manifestations over time as well as basic changes in the patient over time to do with weight, height, and head circumference.hackathon def

Image by Clair Topalian {link to http://blog.up.co/2012/11/05/why-startup-weekend-is-not-a-hackathon/}

The event will be hosted by the Association for Information Science and Technology UAlbany Student Chapter (ASIS&T) on Saturday, September 14th from 8:00am-5:00pm in HU0109 on UAlbany’s uptown campus.

For more information about the Hackathon, contact

ASIS&T Officers: ualbanyasist@gmail.com

Luis Ibanez: libanez@albany

For more information about rare diseases and the project here are some links for further research:

•http://sirensong.sireninteractive.com/rare-disease-communities/a-chat-with-rare-disease-advocate-ed-fennell/

•http://www.youtube.com/watch?v=HdqjCdi6xvk&feature=share&list=PL807UjhPdzMjY25wM5BygCQplj8b9VZNA

•http://www.albany.edu/news/41749.php?WT.source=RSS&WT.source=PortalAllNews

•https://github.com/EmilyAndHaley

•https://github.com/EmilyAndHaley/NamingZebras

•https://github.com/EmilyAndHaley/NamingZebras/wiki/_pages

•https://github.com/EmilyAndHaley/NamingZebras/wiki/Draft-of-Initial-Prototype

The application is hosted in Github, and is distributed under the Apache 2.0 License.

To register for the event:

https://docs.google.com/forms/d/1yJyo8MB_kv6xhOW3OySNJL1nzhwgxWRTlju8Y7HMSFU/viewform

Advertisements

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s